@inproceedings{disBarth2026,
author = {Barth, Clara-Maria and Fedosov, Anton and Wacharamanotham, Chat and Bernard, J{\"u}rgen and Huang, Elaine M.},
title = {“How Do I Want to Live with Type 1 Diabetes?”: Understanding Self-Management Styles to Inform the Design of T1D Technologies},
year = {2026},
isbn = {9798400725630},
publisher = {Association for Computing Machinery},
address = {New York, NY, USA},
url = {https://doi.org/10.1145/3800645.3813059},
doi = {10.1145/3800645.3813059},
pdf = {https://dl.acm.org/doi/pdf/10.1145/3800645.3813059},
abstract = {Although HCI research indicates that lived experiences should be considered in technologies for type 1 diabetes (T1D) management, technologies and prevailing concepts for “successful” management continue to focus narrowly on metrics for improving blood glucose, rather than a holistic understanding of life with T1D. T1D shapes every aspect of life, including personal priorities, values, and needs, making it highly personal and manifesting in different practices. We conducted semi-structured interviews, a 5-day diary study, and a workshop with 10 individuals with T1D to elicit and reflect on different ways of living with T1D. Based on these accounts, we conceptualize self-management styles as a multidimensional construct spanning seven dimensions: values and prioritization, planning, risk-taking, rhythm of care, openness to experiment and learn, engagement in tracking, and success definitions. We contribute an account of these dimensions that designers can use as a lens for developing T1D technologies that support personal ways of living with T1D, foregrounding lived experience and outlining implications for HCI research.},
booktitle = {Designing Interactive Systems Conference},
pages = {2224–2242},
numpages = {19},
keywords = {Health, Type 1 Diabetes, Qualitative Study, Patient-Centered, Self-Care Technology},
location = {Singapore, Singapore},
series = {DIS '26},
teaserpage = {1},
topics = {Experiments and Empirical Work, Visual Analytics in Health Care},
code = {P033},
}